Posted on 6th April 2017 in Featured + News & Updates

Progenics Pharmaceuticals, Inc., announced the achievement of an important milestone that moves their orphan drug AZEDRA® (iobenguane I 131) Injection closer to requesting FDA-approval.  AZEDRA is a targeted radiotherapeutic agent being evaluated as an imaging agent at low doses and a cancer-killing therapy at high doses for the treatment of malignant and/or recurrent pheochromocytoma/paraganglioma.  Results […]

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Posted on 28th February 2017 in News & Updates + Uncategorized

(The following article was contributed by Attiya Khan.) Today is Rare Disease Day. In December 2016, I was diagnosed with pheochromocytoma (pheo). Pheo is a rare tumor that usually develops in cells of an adrenal gland.   I want to let others know what this has been like for me. This is not so others can […]

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The Pheo Para Troopers are being represented in Washington, DC for Rare Disease Week. Share your story with us at #pheopara and #RareDiseaseDay on Facebook and Twitter. Let’s join together and raise awareness! Read this new article from Trooper Attiya Khan – thank you for sharing your story!

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Posted on 28th October 2016 in Featured + News & Updates

Thank you for your interest in the World NET Cancer day on Thursday 10 November 2016, and the “Let’s Talk About NETs Campaign”. World NET Cancer Day is an annual, awareness-raising event coordinated by the International Neuroendocrine Cancer Alliance (INCA) at an international level. The PheoPara Troopers is partnering with INCA in this effort. Neuroendocrine […]

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Posted on 27th October 2016 in Uncategorized

Brittany Zaita, age 17 New York A person who is diagnosed with a rare cancer such as Pheochromocytoma/Paraganglioma faces the issue of becoming extremely dependent on an array of doctors and experts who can give all the knowledge that they possess to achieve a proper treatment plan. The difficulty lies in finding the right doctor, […]

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