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Posted on 31st August 2017 in Featured + News & Updates

Pheo Para Alliance and Pheo Para Troopers, the two most recognized global nonprofit organizations focusing on pheochromocytoma and paraganglioma (pheo/para) have announced their intentions to merge. The goal of the merger is to optimize assistance to patients of this orphan cancer. Historically, the Pheo Para Alliance has focused on donor programs that support research and […]

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Posted on 20th July 2017 in Featured + News & Updates

A clinical research group at Yale Medical School anticipates beginning a clinical trial in the near future with pheo/para patients to test a drug already approved for use in multiple types of cancer for efficacy in our patient population. If you are interested in learning more about this trial and being pre-screened for potential inclusion […]

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Posted on 10th May 2017 in Featured + News & Updates

[Editor’s Note: This article was written by Alisa Zaita.] On Friday, May 5, 2017, I attended the 6th Focus on Neuroendocrine Tumors at the Abramson Cancer Center at the University of Pennsylvania in Philadelphia. As usual, the topics and presentations were both informative and engaging. The conference was seamlessly co-chaired by Debbie Cohen, MD and […]

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Posted on 6th April 2017 in Featured + News & Updates

Progenics Pharmaceuticals, Inc., announced the achievement of an important milestone that moves their orphan drug AZEDRA® (iobenguane I 131) Injection closer to requesting FDA-approval.  AZEDRA is a targeted radiotherapeutic agent being evaluated as an imaging agent at low doses and a cancer-killing therapy at high doses for the treatment of malignant and/or recurrent pheochromocytoma/paraganglioma.  Results […]

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Posted on 28th February 2017 in News & Updates + Uncategorized

(The following article was contributed by Attiya Khan.) Today is Rare Disease Day. In December 2016, I was diagnosed with pheochromocytoma (pheo). Pheo is a rare tumor that usually develops in cells of an adrenal gland.   I want to let others know what this has been like for me. This is not so others can […]

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