Links
Please visit the following links for more information about pheochromocytoma and paraganglioma.
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Pheo Para Alliance
The Alliance is a non-profit organization with a focus on finding a cure for pheo para through education, research, and fundraising.
http://www.pheo-para-alliance.org/
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Pheochromocytoma and paraganglioma RESearch Support ORganization (PRESSOR)
PRESSOR is an international consortium of doctors and scientists devoted to finding new treatments and diagnostic tools by sharing pheo para research findings.
http://www.pressor.org/
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Pheochromocytoma Organization
This site includes a message board where patients can communicate with each other.
http://www.pheochromocytoma.org/
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National Organization of Rare Diseases (NORD)
NORD is a non-profit organization dedicated to helping those with rare diseases through education, research, and service.
http://www.rarediseases.org/
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Association for Multiple Endocrine Neoplasia Disorders (AMEND)
AMEND is a support group for families affected by MEN disorders.
http://www.amend.org.uk
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VHL Family Alliance
This site provides information about VHL and support group information.
http://www.vhl.org
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Endocrine Society
This group of physicians, researchers, and scientists is dedicated to furthering endocrine research and providing information to patients and physicians.
http://www.endo-society.org
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Do you have a pheo para link to share? Please send it to info@pheoparatroopers.org.
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