The following PDFs are answers to basic questions on pheo and para care. From finding the right doctors to follow-up genetic testing, each file is easy-to-print and can be used as guidelines to bring to doctor appointments or as a tool to better understand pheochromocytoma and paraganglioma. Read descriptions of each article here.
When To Seek Genetic Counseling
A guide explaining the role of genetic counselors, when newly diagnosed pheo/para patients should seek genetic counseling, the benefits of genetic testing, and access to the genetic testing guidelines that patients can bring to their medical physicians.
Pregnancy and Pheo Para
Basic information on risks and care due to the dangers to both mother and child in the rare occurrence of pheo/para during pregnancy.
Plasma Free Metanephrine Protocol
The Plasma Free Metanephrine (PFM) test is a precise test for functioning pheo/para diagnosis. Due to its sensitivity, adherence to certain protocols in diet, drug/medications, and procedural methods are critical for proper testing results. Instructions are covered in detail.
Important Questions To Ask Before Having Pheo Para Surgery
A guide to help patients maintain an open-dialogue and gain further understanding with their doctor by providing questions to ask before having pheo/para surgery.
How To Find A Pheo Doctor
Finding a doctor experienced in managing pheo/para tumors is imperative for successful care. This guide provide tools and information on how to find the right doctor for pheo/para patients
Often called the great mimic, pheo/para is very hard to diagnose. The following document lists other diseases and ailments frequently mistaken for pheo/para.
Diagnostic Tests and Scan Recommendations
The following document discusses lab tests and imaging studies used to diagnose pheo/para tumors.
Vanillylmandelic acid (VMA) 24 Hour Urinalysis
Learn why and how vanillylmandelic acid (VMA) testing is the long-standing test for pheo/para tumors as well as neuroblastoma.