Welcome to PheoParaTroopers.org!
A Pheo Para Trooper is someone who is passionate about fighting pheochromocytoma and paraganglioma. Our goal is to empower and support patients while contributing anything we can to finding a cure for these diseases. If you are a patient, friend, or a family member of a patient, we hope you will join us in this important mission.
In 2010, four patients recognized the need for a patient-run group and started the Pheo Para Troopers. The goal was to facilitate patient communication, supply important information to patients such as links to special events, studies, and current research developments, and contribute to finding a cure for pheochromocytoma and paraganglioma by collecting and analyzing data from patients who also want to work toward our goals.
As patients, we are passionate about finding a cure, and we believe there are many more patients out there like ourselves who can help.
The Pheo Para Troopers over the next five years will:
- Restructure in a manner that allows for global growth, board expansion and leadership, and the creation of an executive director role in order to facilitate our vision and mission.
- Seek out global partnerships with other pheo/para supporters to form community for the common good.
- Focus to raise funds, as well as seek grants, to move forward with patient initiatives that support data collection, treatment, collaboration, and advocacy.
- Further increase our presence as the patient-created non-profit advocacy organization for pheo/para that supports, educates, and empowers patients about their disease.
To empower and support pheochromocytoma and paraganglioma patients globally through knowledge, education, advocacy, and camaraderie while sponsoring key initiatives in data collection, treatment, collaboration, and patient wellness.
Advocacy – We are actively engaged in activism and awareness campaigns for our disease.
Care – We cherish our community and demonstrate compassion and empathy in our responsiveness to everyone we encounter.
Integrity – We demonstrate reliability in all of our interactions through honesty, ethical conduct, accountability, transparency, and fairness.
Collaboration – We benefit the most when we collaborate with stakeholders like other charities, the medical and scientific communities, government bodies, and the pheo para community.
Community – We strive to build a strong pheo/para population that gives hope, a sense of connectedness, and camaraderie. Together, we are strong.
Innovation – We continuously look for ways to improve our services to the pheo/para community. We are passionate about finding effective treatments and a cure.
Empowerment – We are committed to providing educational materials and medical information to the pheo/para community to enable patients and their supporters.
“For the patients, by the patients.”