Monthly Archives: July 2016

Troopers at PACT Digital Health Summit

On June 15, 2016, Alisa Zaita (Pheo Para Troopers Treasurer) attended the PACT Digital Health Half-Day Summit in Philadelphia, PA. The Keynote speaker was a doctor by the name of Howard Krein. He is a head and neck surgeon and captivated the audience by telling how when his brother in law was diagnosed with an aggressive form of brain cancer, he had difficulty navigating around the medical records department to get scans and data from one expert to another around the world. In this day and age that lag time is simply unacceptable. Alisa found it hard to believe that a surgeon had a hard time, but then he went on to disclose that his brother in law was actually Beau Biden, the Vice President’s son. It speaks volumes as to how we need to change our health system to allow the right people to access records on the spot. Alisa had the honor to sit on a panel discussion to speak about cancer treatment and raising awareness for pheochromocytoma patients.

Learn more about the conference here.

Troopers: Tell the World!

Category:

Calling all Troopers!

We are launching a new campaign and we’re going to TELL THE WORLD about pheo/para.  Let’s go viral and raise awareness of our rare disease. Join us in just 3 simple steps:

1. Print this piece of paper.
2. Fill it out (get creative!) and take your photo.
3. Share your photo on the Trooper Facebook page. Let’s take this viral and raise awareness of pheo/para! #TroopersTelltheWorld

I’M A TROOPER! sign

Paper

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(Pheo Para Trooper Executive Director Kim Cunningham)